Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. Submit an Obituary. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. "It hurts everything inside of me to make this video," she said into the camera. 2.61M subscribers Claire Wineland Dies at 21 and Leaves Beautiful Message Cystic fibrosis activist reveals the most important lesson she learned while living her life in a hospital room. She had a popular YouTube channel, gave . Find an Obituary . Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. March 04, 2022 "Disability is not the word that should be used to describe what Claire had because she turned it into her platform. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare.The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. It's a reality of living with cystic fibrosis she's come to accept. She was 21. When it came to her care, she knew her body best -- what worked for her, what didn't and how far she was willing to go.So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. What happened in the Ukraine helicopter crash? Claire Lucia Wineland (April 10, 1997 September 2, 2018) was an American activist, author, speaker and social media personality. Kalpana Chawla Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. "Claire's gift is huge, I want your family to know that your daughter is a hero. On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. I didnt realize how much I didnt expect to live this long. Shed also get a butt. She had a popular YouTube channel, gave public speeches, and made appearances on CNN and The Dr. Oz Show. She founded the non-profit Claires Place Foundation to provide emotional and financial support to families living with cystic fibrosis. She has gone on to become an advocate for others suffering from the disease she has had since birth. There is no passionate rant to be had here I am just happy and thought I would let you all know. [3] The foundation offers both emotional and financial support through their Support Families Network andthe Extended Hospital Stay Grants program. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. Entrepreneur and founder of the award-winning non-profit organization Claire's Place Foundation, which provides support to families living with Cystic Fibrosis. Im grateful for the chance to keep being a person. Its about what youre making of your life and whether you can find a deep pride in who you are and what youve given.. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. You are an inspiration and brought joy to many. She was placed in a medically-induced coma, for 16 days. Claire Wineland (1997-2018), inspiring speaker lived with cystic fibrosis. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. Claire Wineland was born on April 10, 1997, in Austin, Texas. She passed away peacefully, with her parents by her side. (Bio, Age, Family, and Death) Claire Wineland was an author and activist who was born in Austin, Texas, on 10th April 1997, to Melissa Yeager and John Wineland. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. She played hide-and-seek with nurses and left explosions of glitter in her wake. The gift of life: Recipient of an organ donation herself, her organs were donated after her death. She had a popular YouTube channel, gave Who is Claire Wineland? Its not for me and never has been.. The family received immense support from friends, and community. I am 17 years old and a senior in high school. ", Claire took the gift of life and her health seriously, but she didn't take herself too seriously. The cause of death was a massive. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. See the events in life of Claire Wineland in Chronological Order, https://verilymag.com/2016/12/claire-wineland-cystic-fibrosis-living-with-chronic-illness-inspiring-women-news-1612, https://www.tah-heetch.com/claire-wineland-on-cystic-fibrosis-death-wish-coffee-company-hjh9onjzix7b1usu.html, https://www.mirror.co.uk/news/us-news/youtube-star-claire-wineland-dead-13190564, https://www.lionsroar.com/claire-wineland-cystic-fibrosis-activist-dies-at-age-21/, https://centredailytimes.org/health/claire-wineland-dead-21-youtube-star-passes-week-undergoing-44680242, https://www.wpsdlocal6.com/2018/09/03/she-expected-to-die-young-then-came-the-call-that-offered-new-life/, http://www.newindianexpress.com/entertainment/english/2018/sep/09/documentary-on-author-activist-claire-wineland-in-works-1869742.html. Extended Hospital Stay Grants provide financial assistance to families who find it difficult to arrange funds for an extended hospital stay. She has a younger sister named Ellie. "Go enjoy your life. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Wineland appeared in an episode of the American teen medical comedy-drama TV series, Red Band Society. She also made an appearance in the documentary series, My Last Days, which was created by actor Justin Baldoni. Obituaries Section. Read full obituary. Wineland miraculously came back to life. "None of it spooked me," Claire said afterward. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. Yeager posted a video of herself doing a happy dance with friends in the waiting room.But not long after the successful surgery, hope turned to fear. By asking for it, she said, she could relax and get in the headspace for whatever would come next. The Times-Picayune. She did. I don't spend any time thinking about the day that I'm cured, or the day that I'm healthier, and that's because I know that on a certain level, it doesn't matter. Her first uploaded video, "I stopped doing the Clarity Project because I got screwed over," revealed that The Clairity Project was operated by a video editing company and she had little to no control or input over the editing of her videos apart from their filming and creation. Claire Wineland, who inspired millions on YouTube chronicling her cystic fibrosis battle, has died after a lung transplant By Kyle Swenson September 4, 2018 at 3:58 a.m. EDT YouTube star. She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. The medical team that tended to her became family. Pink Floyd, The Beatles, The Killers, The Rolling Stones, Ben Harper, Dr. Who, Dexter, Adventure Time, SpongeBob SquarePants, Harry Potter by J. K. Rowling, The Mortal Instruments by Cassandra Clare. @larissaperoux We some cheese balls just cheesing it up. [9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. Who was Ukrainian minister Denys Monastyrsky? Claires Place Foundation is planning to continue extending support to patients. Her mother, Melissa Nordquist Yeager, and father, John Wineland, separated, when she was three years old. The Plain Dealer. A double-lung transplant, when successful, can add years to a patients life. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. Check out the death cause, death date, and more facts about the. The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. She revealed that The Clairity Project was not under her control. The 2019 film Five Feet Apart was inspired by and dedicated to Wineland, who served as a consultant on the film. She performed with Philips Breathless Choir, as a solo singer. Dedicated daily to memorializing notable personalities. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. Did you encounter any technical issues? I have step parents that are fabulous. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. Given the severity of the stroke and Claires advance directive, it became clear that it was time to let her go. These words were a gift, a reminder that Claire would remain with her always, even after she was gone. 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